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Children's Tumour Foundation Au
Children's Tumour Foundation Au aims to improve knowledge of NF and access to support services for all people impacted by the condition.
In Australia one in 2,500 people are affected by NF, making it more common than some widely recognised conditions like Cystic Fibrosis, yet there continues to be low community awareness and little support available for people affected by NF.
A diagnosis of NF presents many challenges - physical and psychological but also barriers to accessing the best care and support from childhood right through to adulthood. Whilst Australia leads the way in NF research, being home to world-leading medical researchers, there remains critical gaps in clinical services for children and adults across the country that the Children’s Tumour Foundation of Australia is dedicated to bridging with the support of the community.